My Experience: Urinary Mycotoxin Testing

One of my biggest challenges with recovering my health has been mold.  It is no secret that I struggled with mold illness that led me to once leaving my home in order to create an environment that was more conducive to healing.  Then in 2015, I was exposed to mold again on a regular basis.  I felt my overall health on less stable ground and felt my inflammation levels increasing.

I had done RealTime Laboratories urine mycotoxin testing in 2013 and it was very good.  At the suggestion of one of my practitioners, it was suggested that I repeat the test in late 2015.  To my surprise, I was HIGHLY positive on both Ochratoxin and Gliotoxin.  Aflatoxin was not far from being considered positive and similar for trichothecenes.  These results as compared to my results from 2013 were a major red flag.  

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Guest Blogger: A Patient’s Mother Interviews Ty R. Vincent, MD about LDI for Autism, Pediatric Lyme and PANDAS

Dr. Ty Vincent MDI’m going to start out this interview by disclosing to readers my own story. I’m both the mother of your patient and your interviewer. You have been treating my own eight year old son, who has autism and Lyme and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep), for over a year now. I had been doing autism biomed interventions with him for five years, before learning he had chronic Lyme disease. During that time I tried many supplements that helped, but he would eventually peter out.

For example, when he was a toddler diagnosed with mitochondrial dysfunction, the mito cocktail increased his energy, responsiveness and activity level for a few months. But he became lethargic again; and although he still did better with the mito cocktail than without it, it no longer helped to the same extent it did at first.

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The Forum for Integrative Medicine: Managing Chronic Complex Illness


The Forum for Integrative Medicine hosted a "beyond superb" event March 3-5, 2016 in San Diego, CA.  The event had some of the best prractitioners in the field of Lyme, mold, and chronic illness.  With speakers like Dr. Dietrich Klinghardt, Dr. Patricia Kane, Dr. Ann Corson, Dr. Kristine Gedroic, Dr. Raj Patel, and many more of the greats, this was a "not-to-be-missed" event.  Unfortunately, the event was not recorded.  I'll do my best to share some of my key takeaways here, but the below is only a very small sampling of all that was discussed at this conference.  

Special thanks to Susan McCamish and her team for coordinating this excellent event.  It was originally Susan's idea to have an integrative conference, and it proved a huge success.  

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Corson's Corner

I am so excited and honored to be able to share the information here from Dr. Ann Corson, MD.  She has been a mentor of mine for years.  She is someone I respect immensely and appreciate her passion for helping her patients to find answers and recover their lives.  

I have heard her speak many times over the years and always learn so many new things.  Most recently, she gave two lectures that I was fortunate to attend at the "Managing Chronic Complex Illness" conference in San Diego, CA in early 2016.  

It says the world to me that Dr. Corson is willing to share her deep experience and many years of work for free through these presentations.  Thank you, Dr. Corson!

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Autism Recovery Telesummit: Recovering From Lyme Disease, A Potential Factor in Autism

In January 2016, I was honored to be a part of the online Autism Recovery Telesummit event.  The event was put together by Luminara Serdar and made so much great information available to the public.  I listened to a number of the sessions and found it very insightful. 

Luminara was very kind to allow speakers to post their talks with her on their own blogs at no charge.  Thanks Luminara!  So, here it is.... My interview with Luminara on "Recovering From Lyme Disease, A Potential Factor in Autism".  I hope you enjoy it.  

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LDI (Low Dose Immunotherapy)

I recently suggested that LDI was one of the most exciting new things I had encountered in 2015 in the treatment of Lyme, and I think it will continue to be a top new treatment in 2016 based on all of the patients and practitioners I have spoken to about it.  Is it a home-run for everyone?  No, nothing is.  Can it cause major flares and Herxheimer reactions?  Yes, absolutely.  So, please don't think that LDI is a panacea, but it makes total sense to me, and I am very excited about it. 

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ILADS 2015: From Bench to Bedside: Translating Research Into Clinical Practice

This blog entry shares my notes from some of the sessions I attended at the 2015 ILADS conference in Fort Lauderdale, FL.  As my interest is in more integrative and alternative treatment options, this may not be an accurate representation of the overall content of the event as there are several concurrent sessions, and thus, I was unable to attend many of the lectures at the event.  Recordings of the sessions may be found from the ILADS web site at http://www.ilads.org.  

I started going to ILADS in 2006 and this was my TENTH YEAR! to attend the event.  I haven't missed a single annual conference since 2006.  I am grateful to ILADS for all they have done to help those of us that have dealt with Lyme and for all that they continue to do.  I'm excited to see how many people come to this event every year.  It should be even larger, but it has grown notably in the past decade.  

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Finding Your Way With The Complicated Patient

Finding Your Way With The Complicated Patient was hosted by Gordon Medical Associates and was held in Santa Rosa, CA on September 26, 2015.  Gordon Medical is one of the clinics that I have the utmost respect for; their practitioners are top notch and really care about helping people.  The conference was a lot of fun; almost like a reunion seeing so many people that have come into my life over the years through my journey with chronic illness.  

The below represents only a subset of the great information shared at this event.  The event was recorded so I recommend watching the GMA web site for DVD ordering information.  You will learn so much more than I can possibly share below.

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Curing the Incurables 2015

September 11-13, 2015 was the weekend that the Curing the Incurables was hosted by Dr. Simon Yu MD in St. Louis, MO.  

I went to his conference in 2013 as well and learned a lot.  I once again combined this conference with a consult with Dr. Yu to confirm that my cavitation surgery from two years ago had worked and that there was no return of dental infection.  Fortunately, there didn't seem to be which was great.  He did find a bite issue that I will need to explore, but not having to do another surgery is certainly welcomed news.

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Atlas! Something That Was Amazing!

Sorry for my sense of humor, but I intended to suggest that "Atlas, I found something that really made a difference!".  Get it?  Atlas instead of "at last".  Ok, ok.  I tried the same joke on the doctor and I'm not sure it went over well there either.  Never hurts to try.

Nonetheless, many years ago, I saw Harvey Bigelsen who sees holograms in the blood under a microscope.  This was when I still had active Lyme.  Dr. B said that my number one issue was structure and that nothing would resolve entirely if that were not addressed.  

Since then, I have seen at least two dozen DOs, DCs, physical therapists, and so on with little or no result.

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An Integrative Approach to Chronic Infections and Tick-Borne Illness

Beyond Balance hosted a superb event entitled "An Integrative Approach to Chronic Infection and Tick-borne Illness" in Parsippany, NJ on May 16, 2015.  When I saw the list of speakers, I knew I needed to get on a flight and head to New Jersey as this event had some of my favorite healers.  I'm glad I did.  

Speakers included: Ann Corson MD, Kristine Gedroic MD, Tom Moorcroft DO, Marie Matheson ND, and herbalist and naturopath Susan McCamish.  Susan McCamish is also the formulator of the many umbrella-like in nature herbal blends offered by Beyond Balance and ones that I personally use on a daily basis for my own continued health improvement.  

The entire event was videotaped and is available through Beyond Balance for those that would like to listen to the full detail from each speaker which goes far beyond what I am able to represent here.   

Enjoy!

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  BetterHealthGuy.com is intended to share my personal experience in recovering from my own chronic illness.  Information presented is based on my journey working with my doctors and other practitioners as well as things I have learned from conferences and other helpful resources.  As always, any medical decisions should be made only with the guidance of your own personal medical authority.  Everyone is unique and what may be right for me may not be right for others.