- Last Updated: January 27 2014
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|Date||Amount||Symptoms / Notes||Supportive Treatment||Nagalase Level|
|09/20/2011||.15 ml||Nothing notable||None required||2.9|
|09/25/2011||.15 ml||Nothing notable||None required||2.9|
|09/30/201||.15 ml||Nothing notable||None required||2.9|
|10/05/2011||.15 ml||Nothing notable||None required||2.9|
|10/10/2011||.15 ml||Starting on 10/14/2011, I noticed slight inflammation. At the time, I thought it may have been from doing inversion therapy or some other unrelated cause.||Started taking Life Enhancement NanoCurcuminoids, Metagenics UltraInflamX, Alka Seltzer Gold, Pekana apo-Hepat, Pekana ITIRES, DNA Traumagen, and Byron White A-INFLAM.||2.9|
The inflammation progressed to my hands, feet, neck, shoulders, back, hips, and knees. Even my eyes hurt. At this point, I took a break from the GcMAF which is illustrated by the gap between injections from 10/15/2011 to 11/01/2011. By 10/22, the inflammation had largely settled into my neck and upper shoulders though there was still some systemic inflammation.
At this time, turning my head to drive was not easy. I seemed to become sensitive to anything with Curcumin in it based on energetic testing. It wasn't the first time that Curcumin had become an issue as was evidenced by previous blood-based food allergy testing. For a few days, I took high dose ibuprofen which helped only mildly.
I then worked with a practitioner that does energetic testing to attempt to get additional insights into what may be happening. Interestingly, I still seemed to test as though the GcMAF was beneficial; even in the midst of what was a very uncomfortable situation. The testing showed that there was some interplay between the GcMAF and my tonsils. I've been doing work on my tonsils for the last several months with homeopathics and with cryotherapy in Germany. My need for magnesium was quite high. Several other supportive treatments were identified.
|Red Root (lymphatic drainage; move things out), Magnesium / Malic Acid, Magnesium Malate, Pekana Inflamyar pellets and lotion, Pleo-Not (tonsils), Biocidin drops (tonsils). Epsom Salt baths and massage.||2.9|
|11/01/2011||.10 ml||While the inflammation had not entirely resolved, it was about 30% improved. I did not want to wait to get back on the treatment since I had already taken a two week break. Thus, I lowered the dose from .15ml to .10ml. I'm waiting for the results of my nagalase testing, Vitamin D levels, magnesium level, and a CBC.||Same as above plus Ionic Magnesium and coffee enemas.||2.1 (drawn 10/19)|
|11/08/2011||.10 ml||Still experiencing inflammation and discomfort especially around shoulders and neck. Waiting for nagalase and CBC test results. It is interesting that within 15 minutes of an injection, I feel a warm sensation and my jaw starts to get tight - traditionally a die-off response sign in my experience.||Trying mangosteen liquid to support reduction of inflammation.||2.1|
|11/15/2011||.10 ml||Still experiencing inflammation and discomfort especially around shoulders and neck. Waiting for nagalase and CBC test results.||Continuing with magnesium, Biocidin, INFLAMYAR pellets, Mangosteen, coffee enemas, Pleo-Not, and massage.||2.1|
|11/22/2011||.15 ml||Still experiencing inflammation and discomfort especially around shoulders and neck but improving. Waiting for nagalase and CBC test results.||Focus at present for inflammation is massage, coffee enemas, INFLAMYAR, and mangosteen. It seems that the need for Red root and other items mentioned earlier has lessened or gone away.||2.1|
|11/30/2011||.10 ml||Inflammation continues but at a tolerable level mostly around neck, shoulders, and back of head. After each shot, my body feels warm and various sensations are felt throughout the day. The inflammation generally increases a bit after a shot so I pay close attention to keeping on all the anti-inflammatories. Still waiting for nagalase results and scheduled second retest for next week even though the first one has still not been returned.||Continuing with INFLAMYAR, Mangosteen, coffee enemas, magnesium. Added Propolis which is also an anti-inflammatory.||2.1|
|12/05/2011||.15 ml||Inflammation continues and worsens with exercise. It seems that anyplace I have some weakness or inflammation normally is where the GcMAF inflammation is more pronounced.||Continuing with items mentioned above. Have also been using some Advil and Aleve when necessary. Also have been using PEMF therapy in an attempt to reduce inflammation and pain further. Having second nagalase retest drawn today.||2.1|
|12/13/2011||.10 ml||Inflammation remains the same.||Added PSC Hedge Maple.||1.2 (drawn 12/6)|
|12/20/2011||.15 ml||Inflammation remains the same. Should have second nagalase retest back in a couple of weeks.||Continuing as per above.||1.2|
|12/27/2011||.15 ml||Doing well overall. Still some inflammation but tolerable.||Continuing as per above.||1.2|
|01/03/2012||.15 ml||Doing well overall. Still some inflammation but tolerable.||Continuing as per above.||1.2|
|01/10/2012||.15 ml||Doing well overall. Still some inflammation but tolerable.||Continuing as per above.||1.2|
|01/17/2012||.15 ml||Doing well overall. Still some inflammation but tolerable.||Continuing as per above.||1.2|
|01/24/2012||.15 ml||Doing well overall. Still some inflammation but tolerable. I still have more inflammation than before starting GcMAF. I am doing another nagalase draw today and hoping to be close to stopping the therapy as soon as 6-8 weeks from now though given that the blood tests takes about that long, I may end up going longer as I don't want to assume that I have reached my target level and would prefer to keep going until the blood tests show a nagalase level of 0.4-0.6 or less.||At this point, I'm doing Pekana INFLAMYAR liquid and not much else specific to inflammation at this point.||1.2|
|01/31/2012||.15 ml||Doing well overall. Still some inflammation but tolerable.||Continuing as per above.||1.0 (drawn 1/25)|
|02/07/2012||.15 ml||Doing well overall. Still some inflammation but tolerable.||Continuing as per above.||1.0|
|02/14/2012||.15 ml||Doing well overall. Still some inflammation but tolerable.||Continuing as per above.||1.0|
|02/21/2012||.15 ml||Doing well overall. Still some inflammation but tolerable.||Continuing as per above.||1.0|
|02/28/2012||.15 ml||Have been having a significant amount of sinus inflammation the past several weeks. My doctor thinks this is in part related to the overall inflammation of the GcMAF.||Alka Seltezer GOLD, Pekana INFLAMYAR, Fish and Krill oils||1.0|
|03/06/2012||.15 ml||Ongoing inflammation. Hopefully, when I stop, I will recognize some benefits from having gone through the GcMAF therapy as it has been the most difficult thing I have done treatment-wise.||Alka Seltezer GOLD, Fish and Krill oils, Vitamin E in nose and orally||1.0|
|03/13/2012||-||Skipped this week due to acute illness||1.0|
|03/20/2012||.15 ml||Ongoing inflammation.||Alka Seltezer GOLD, Fish oils, Vitamin E in nose and orally||1.0|
|03/27/2012||.20 ml||Ongoing inflammation.||Alka Seltezer GOLD, Fish oils, Vitamin E in nose and orally||0.77|
|04/03/2012||.20 ml||Ongoing inflammation.||Alka Seltezer GOLD, Fish oils, Vitamin E in nose and orally||0.77|
|04/10/2012||.20 ml||Ongoing inflammation though tolerable at this point.||0.77|
|04/17/2012||.20 ml||Ongoing inflammation though tolerable at this point.||0.77|
|04/24/2012||.20 ml||Waiting for new nagalase results and hoping to be near complete with this treatment in the summer||0.77|
|05/09/2012||.20 ml||0.62 (drawn 5/2)|
|06/14/2012||.10 ml||Starting taper off GcMAF||0.62|
|07/05/2012||.10 ml||0.65 (drawn 6/29)|
|08/21/2012||Skipped||After having been on GcMAF and adding MAF 878 and additional antimicrobial treatments, I started to have significant inflammation again much like a year ago when I first started GcMAF. Have decided to take a break from the injections until the inflammation is better controlled. While my nagalase is at a good level and I could in theory stop, the fact that I still get inflammation suggests that it still has an effect. Thus, one of my practitioners suggested I continue with the injections until the end of the year. While I did not anticipate MAF 878 would cause additional inflammation, I have spoken to several people that have had inflammatory issues with the MAF 878.||0.65|
|08/28/2012||Skipped||Still notable inflammation||0.65|
|09/04/2012||Skipped||Still notable inflammation||Restarted coffee enemas which helped tremendously the first time around||0.69 (drawn 8/29)|
|09/11/2012||Skipped||Started to add a few new options in an attempt to control the inflammation||Cholestepure, Boswellia, Tart Cherry Juice, Ginger Force, Chinese Skullkap, Algonot NeuroProtek, Claritin||0.69|
|10/02/2012||.10 ml||Still having inflammation but not as bad as it was a month ago||0.69|
|11/13/2012||.10 ml||The inflammation has gone back to baseline and I have stopped many of the additional anti-inflammatories, etc. at this time other than NeuroProtek and Boswellia||0.60 (drawn 11/9)|
|12/04/2012||.10 ml||At this point, I plan to only inject when this muscle tests; initially estimating every 2 weeks and then every 4 weeks. I am winding down the GcMAF treatment but will continue to monitor via nagalase testing.||0.60|
|2/06/2013||.10 ml||0.64 (drawn 1/23)|
|6/04/2013||.10 ml||0.60 (drawn 5/16/13)|
|8/05/2013||.10 ml||Also introduced low dose Bravo Probiotic around this time||0.60|
|12/10/2013||n/a||No longer using GcMAF or Bravo||0.79|
Final Thoughts on GcMAF: As of January 2013, I am on once monthly injections at .10 ml and will continue to monitor my nagalase levels every couple of months to see if there is any increase in the levels now that I have gone from 2.9 to 0.6. The goal is to do as little ongoing GcMAF as needed, maybe none at some point, and still keep the nagalase levels low. Since this is largely still very early in being used in people with Lyme, it remains unclear if my nagalase will go back up or not. Time will tell.
As for the treatment overall, it was by far the most difficult single treatment I have done throughout my recovery and seemingly counter-intuitive to think that at near the end of my journey, it would be so rough. I think it shows how many layers are involved in these conditions and this therapy seemed to get at a layer that nothing else had. Hopefully, by turning back on my immune system, it will prove to have been worth the significant inflammation and discomfort that resulted. I think it will. Additionally, my doctor suggests that it absolutely lowers your risk of cancer over your lifetime which is also good.
My energetic practitioners seem to find very few if any microbes now which tells me that my immune system is more self-reliant. A darkfield practitioner told me my immune system looked like I was a teenager. So, there may be a few good things, but I can't claim any major physical changes happened as a result.
Additionally, I think this is a very tricky therapy to ensure that side effects can be managed if they occur. I think that lower dosing makes more sense that higher dosing; especially if comfort is a consideration. By far, coffee enemas were the most helpful way to manage the difficulties with GcMAF for me. I think that GcMAF therapy in people with Lyme is absolutely NOT appropriate for self-treatment without a doctor on board. I do sometimes hesitate to suggest it to people given how difficult it has been for myself and others, but for some people, it may well be worth it. For what it's worth, my response to it seemed to be stronger than most and my starting nagalase level higher than most, but I urge caution.
Update January 2014: I think that some practitioners have learned that going very low and very slow with GcMAF is a better option that being aggressive with it. There are practitioners that I have talked with that have had very good results in their patient populations using a very low dose approach, often 5 nanograms or less as compared to the 100 nanograms that some suggest. I think that if one is working with a doctor that has experience with GcMAF and is being very careful with the dosing approach, it can be helpful for some people.
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